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Devoted To Supporting And Advancing

Comprehensive Care Of Patients And Families Living With Sickle Cell Disease.

The New England Sickle Cell Consortium is a regional cooperative group of New England stakeholders devoted to the education, research, advocacy, support.

Sickle Cell Disease’s Impact:

100,000

Americans affected by SCD

1 of 16,300

1 out of every 16,300 Hispanic-American births

1 of 365

1 out of every 365 Black or African-American births

3,000

Active sickle sell patients in the New England area

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We Work With

Patients and Families

Support for patients and families affected by Sickle Cell Disease.

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Support for patients and families affected by Sickle Cell Disease.

Patients and Families
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Caregivers and Nurses

Support for healthcare providers, nurses and clinical staff involved in Sickle Cell Disease.

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Support for healthcare providers, nurses and clinical staff involved in Sickle Cell Disease.

Caregivers and Nurses
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Schools and Communities

Support for schools, nurses, teachers, and communities navigating Sickle Cell Disease.

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Support for schools, nurses, teachers, and communities navigating Sickle Cell Disease.

Schools and Communities
Visit Now
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We’re Changing How The World Approaches Sickle Cell Disease.

Together, we aim to build a future where every person affected by sickle cell disease in New England can access comprehensive support, leading to improved quality of life and a stronger, more connected community.

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Watch Last Year’s Symposium & Celebration Recap

Associated Member Organizations:

Upcoming Events

Join Us And Register For This Year’s Annual Sickle Cell Disease Symposium.

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“I was born a warrior, a man born with the fight within him, Sickled at birth, but not chiseled to death. I was born a warrior, Born to fight for my every breath, Born to fight to become a victorian, Born to live a war within me.”

— Edonusem H.A.Y. Pomeyie, 15, NESCC Patient
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“We are the parents of a sickle cell patient, and below is our experience with the disease.”

Patient
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“By the end, I felt blessed to have a team of doctors committed to a safe and healthy delivery for both me and Nathaniel. ”

Patient

Find Sickle Cell Disease Support:

Stay Connected With NESCC

Working to enrich the lives of patients and families affected by sickle cell disease in New England. info@newenglandsicklecell.org

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