Devoted to supporting and advancing comprehensive care of patients and families living with sickle cell disease.
The New England Sickle Cell Consortium is a regional cooperative group of New England stakeholders devoted to the education, research, advocacy, support.
Sickle Cell Disease’s Impact:
100,000
Americans affected
by SCD
1 of 16,300
1 out of every 16,300 Hispanic-American births
1 of 365
1 out of every 365 Black or African-American births
3,000
Active sickle sell patients in the New England area
We Work With
↓
Patients and
Families
Caregivers
and Nurses
Schools and
Communities
We’re changing how the world approaches sickle cell disease.
Together, we aim to build a future where every person affected by sickle cell disease in New England can access comprehensive support, leading to improved quality of life and a stronger, more connected community.
Associated Member Organizations:
“I was born a warrior, a man born with the fight within him, Sickled at birth, but not chiseled to death. I was born a warrior, Born to fight for my every breath, Born to fight to become a victorian, Born to live a war within me.”
— Edonusem H.A.Y. Pomeyie, 15, NESCC Patient
