Get Connected - Registry
About:
Get Connected is the first patient powered registry for sickle cell disease! By registering on this secure and HIPAA-compliant platform, you empower yourself and the sickle cell community to stand up and be counted. Get Connected allows SCDAA to collect and cite the number of people living with sickle cell disease (SCD) and the regions where they live to decision makers. Our goal is to demonstrate the significance of SCD as a global public health issue and to keep SCD at the forefront of health discussions.
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